A recent UK study explored the experiences of children, adolescents, and adults with TS – and their families – revealing what works, what doesn’t, and where improvements are urgently needed. Findings show that knowledgeable, engaged healthcare professionals make a huge difference, but long diagnostic delays, limited specialist access, and fragmented care leave many relying on self-devised strategies and peer support.
The study calls for better professional training and holistic, multidisciplinary care that goes beyond medication, focusing on real-life challenges and quality of life.
Discover the insights from the voices of those living with TS – read the lay summary here
