Tics and Tourette Across the Globe (TTAG) is registered as an umbrella association representing a community of Tics and Tourette Syndrome (TS) associations collaborating at an international level to improve conditions for people impacted by tics and TS. TTAG is a non-profit association founded in 2022, registered in Hannover, Germany, serving an international community.
TTAG is committed to embedding lived experience across all its work, ensuring that the perspectives of people affected by Tourette Syndrome are central to decision-making, research, and advocacy.
Our objectives are to:
Establish and promote an exchange of information, experience, best practices, and experts throughout the world to improve the lives of people with TS.
Develop relationships and exchange information with other relevant international and/or global organisations with similar aims.
Represent those concerned to all international institutions and liaise with other Non-Governmental Organisations sharing similar aims and objectives.
Promote TS awareness on a global level, promoting evidence-based treatment and supporting the efforts of its members throughout the world, combating ignorance, stigma and intolerance with regard to TS.
Aid the establishment of TS associations in more countries around the world.
Support for, and participation in, national and international scientific research and surveys with particular emphasis on early diagnosis and intervention.
We believe in having a stronger voice working together.
The more members supporting us, the bigger and stronger we become!
Membership Categories
Tourettes Associations
TTAG is a global community welcoming Tourette associations to become a member to support TTAGs purposes and aims.
This category includes associations working and advocating for people with tics and Tourette Syndrome (TS). As a member association, you become part of a larger community. We share experiences, ideas, resources and support each other.
Benefits:
- obtain peer support from other Tourette associations and share best practices
- opportunity to share expertise and support other countries to establish their own advocacy work
- increased opportunities to take part in international research
- opportunities to take part in international project and activities
- access to joint campaigns for information and awareness
- exchange of centralised, reliable knowledge and resources exchange at a global level
- networking opportunities between advocates, clinicians and researchers from all over the world
- opportunity to support TTAG’s goals through active work and participation in specific committees
- opportunity to influence TTAG’s framework by exercising the right to vote at the General Assembly incl. the nomination of Board members
Support members
TTAG is a global community welcoming organisations (legal bodies), professionals and benefactors.
Organisations (legal bodies, i.e. ADHD, OCD, neurological or other patient organisations, research institutions, healthcare and/or educational networks), who through their membership declare their support of TTAG’s purposes and aims and wish to collaborate.
Professionals
I.e. researchers, educators, healthcare professionals
Benefactors
Organisations (legal bodies) and individuals supporting TTAGs purposes and aims through financial contributions.
Benefits:
- Networking & Collaboration Opportunities – A platform to connect organisations, clinicians, researchers, and patient groups working in related fields.
- Knowledge Sharing & Exchange – Access to meetings, discussions, and shared learning across clinical, research, and lived-experience perspectives.
- Advocacy Development – A basis for strengthening collective voice on issues in healthcare, education, and neurodevelopmental conditions.
- Visibility & Engagement – Opportunities for member organisations to be featured in TTAG communications and joint activities.
- Research Collaboration Potential – A developing framework to support future joint research, knowledge exchange, and dissemination activities.
- Stakeholder & Patient Involvement – Commitment to integrating lived experience perspectives into TTAG activities and development
Membership Criteria
Members of TTAG are admitted following an application process open to associations, professionals and other organizations committed to supporting the aims and activities of TTAG.
All members contribute to advancing work that improves the lives of people affected by Tics and Tourette Syndrome and their families and communities.
Eligible association members must be non-profit organisations, with a legally elected governing board and valid legal registration in their country of origin.
All members agree to adhere to the statutes of “TTAG”.
Members commit to supporting and promoting evidence-based understanding and approaches in the field of Tics and Tourette Syndrome, and to sharing information in line with established scientific and clinical consensus.
TTAG encourages members to support the inclusion of lived experience perspectives in relevant activities, dialogue, and collaboration.
Membership fee
Members pays an annual membership fee based on the category of their membership. Membership is valid for one calendar year.
Tourette Associations
250 Euro per year
Support Members
Organisations: 100 Euro per year
Professionals: 50 Euro per year