Webinar Update: New Date & Expanded Panel on Centering Lived Experience in Tourette Research
📅 New Date: March 26th, 2025
⏰ Time: 11am CST / 12pm EST / 6pm CET
📍 Location: Zoom
🔗 Register now for free and be part of this meaningful discussion!
We’re excited to announce that our webinar, originally scheduled for January 19th, has been rescheduled to the above mentioned date – giving us the opportunity to bring together an expanded panel of experts, researchers, and individuals with lived experience to discuss this vital topic.
This engaging session will highlight how personal insights shape Tourette research, foster stronger connections between researchers and the community, and ensure scientific advancements align with real-world needs.
What to Expect:
🔹 A deeper exploration of why lived experiences are crucial in research
🔹 Strategies for integrating community perspectives into scientific studies
🔹 Insights into how you can actively contribute to research initiatives
🔹 A fresh panel of experts and advocates offering diverse perspectives
🔹 A live Q&A to engage directly with speakers
Panelists:
Christine Conelea, PhD is an Associate Professor of Psychiatry & Behavioral Sciences at the University of Minnesota and a licensed clinical psychologist. She specializes in Tourette Syndrome, tic disorders, OCD, and anxiety, focusing on how brain, environmental, and psychosocial factors influence symptoms and treatment outcomes. Outside of work, she enjoys exploring nature, drumming, word games, and spending time with her kids.
Carolyn Hunt serves as the Community Engagement Lead for Dr. Conelea’s Minnesota Tic and Compulsivity Lab (MnTiC). Her passion is meaningful community-engaged research. She began her career at the NIH and spent 16 years at the University of California, San Francisco (UCSF) facilitating community-research partnerships.
Daniel Jones is a Creative Practitioner, Disability Scholar, and Postdoctoral Research Associate at the University of Sheffield, specializing in inclusive research on Tourette Syndrome communities. An advocate and artist, he has spent over a decade in activism, community facilitation, and collaborative arts to highlight lived experiences and foster dialogue.
Paula-Riitta Huttunen is a TTAG Board member, board member of the Finnish TS association (STOy), and TS advocate. She studies Computer Science at the University of Eastern Finland and has over a decade of lived experience. She also works as an Expert by Experience and advocates for inclusion and opportunities for neurodivergent individuals.
Register today!
We invite you to join us for this important conversation—participation is free and open to all! Be part of the movement to build a more inclusive and community-driven approach to Tourette research. Now is the perfect time to join this important conversation!
🔗 Register now and be part of this meaningful discussion!
