Engage. Interact. Shape a New Conversation
For the 4th consecutive year, TTAG is honored to host our dedicated session at the 18th ESSTS Annual Conference held in Ljubljana, Slovenia. Our theme for this year:
Tourette Across the Lifespan:
Bridging Clinical Practice, Research, and Real-Life Experience.
Despite significant advances in research and clinical practice, important gaps remain between theory, care, and the lived experience of people with Tourette Syndrome across the lifespan.
Join us as we explore Tourette Syndrome across the lifespan – from childhood to adulthood. Discover how challenges evolve over time, and how co-occurring conditions and psychosocial factors shape everyday life. Learn about the impact on quality of life beyond tics and gain insights from experts and lived experiences. This session is your chance to see the full picture of Tourette Syndrome and how it affects real lives.
Our session brings together leading experts, clinicians, researchers, and voices from the TS community, offering insights that connect research, practice, and real-life experiences – moving ahead to ensure progress in closing gaps between theory, practice, and lived reality.
Whether you are part of the TS community, a family member, or a professional, this session offers a space to connect, contribute, and help shape future dialogue, grounded in innovative discussions and practical insights.
Join us and register!
📅 Date & Time: Wednesday, June 17th, 2026, 11:00 – 17:00 CEST
📍 Venue: Grand Hotel Union Eurostars, Ljubljana, Slovenia
Get ready to join us and actively participate in these topics:
Lifespan Perspective on Tourette Syndrome
This presentation offers a comprehensive look at Tourette Syndrome from childhood through adulthood, exploring how tics develop, evolve, and impact daily life across the lifespan. Participants will gain insights into developmental paths, variability, and key life transitions, including school, work, and healthcare changes.
Understanding Co-Occurring Conditions and Tourette Syndrome
In this session, participants will explore the complex relationship between Tourette Syndrome and common co-occurring conditions such as OCD, ADHD, and anxiety. The presentation will highlight how these conditions influence the course of tics, daily functioning, and overall quality of life across the lifespan.
Attendees can expect insights into how co-occurring conditions affect assessment and management, practical strategies for supporting individuals at different life stages, and considerations for optimizing care, education, and psychosocial well-being.
TS in Real Life – Challenges, Obstacles, and the Unknown
Living with Tourette Syndrome (TS) extends far beyond tics. In this session, we shine a light on the real-life experiences of individuals with TS, exploring the challenges, obstacles, and uncertainties they face every day.
Through personal testimonials, participants will gain authentic insights into the social, emotional, and practical aspects of living with TS across different stages of life. These stories highlight both the resilience of the TS community and the areas where greater understanding and support are needed.
The session also features an interactive breakout discussion, allowing attendees to engage directly, ask questions, and reflect on strategies to better support individuals with TS in clinical, educational, and social settings.
Therapeutic Approaches Across the Lifespan: Supporting People, Not Just Tics
This session will highlight how pharmacological and behavioral interventions can be tailored to age and co-occurring conditions in Tourette Syndrome.
Tics are visible, but it is the story built around them—the emotional experiences, social challenges, and self-perception—that shapes a person’s life. Effective intervention goes beyond symptom management: it is about walking alongside someone on their journey, helping them inhabit their body with confidence, acceptance, and without shame.
Participants will explore strategies that support individuals across childhood, adolescence, and adulthood, addressing both tics and psychosocial well-being.
AFSGT Project ‘Livre Blanc’: Behind the Tics – Understanding the every day life of those living with TS
We’re taking a peek into the book project that explores the specific aspects of everyday challenges faced by those living with Tourette Syndrome grounded in the French context, the challenges and lived experiences highlighted in this project reflect common realities faced by individuals with Tourette Syndrome worldwide.
Navigating Lifespan Challenges
Join our moderator-led discussion exploring the evolving nature of Tourette Syndrome across the lifespan. This session will address changes in symptoms over time, strategies for managing co-occurring conditions, and the psychosocial factors that influence daily life and quality of life.
The discussion features an expert panel of researchers and clinicians, with and without lived experience, offering diverse perspectives and practical guidance for supporting individuals with TS at different stages of life.
Supporting Families and Caregivers – Psychoeducation and Beyond
This session focuses on practical strategies, resources, and guidance for families and caregivers of individuals with Tourette Syndrome. From psychoeducation to peer support, skills training, and caregiver guidance, attendees will gain insights on how to effectively support their loved ones while maintaining well-being.
We will be closing out with key takeaways and a goodbye till 2027.
More information on the entire ESSTS 2026 Conference click here.
